Why? Because 1-day-old Seth’s enlarged chest was caused by his enlarged heart from severe aortic stenosis, sending him on a lifelong journey entailing three open-heart surgeries, six cardiac catheterizations, five blood clots, S.B.E subacute bacterial endocarditis and two heart valve replacements.
The first surgery, when Seth was just 1 month old, was expected to clear his heart valve (broadening the “pinhole” sized opening that was keeping him alive) enough to avoid a valve replacement.
The second, when Seth was 5, was expected to provide a solution that would last him to adulthood.
The third, when Seth was 13, entailed the double heart valve replacement that would (with the help of his doctors and Abbott's aortic and mitral mechanical heart valves) irreversibly change his life, but his life wasn’t expected to be that of the average person. He was told there’d be limits on what he could do. As his care team’s first double valve replacement patient, they weren’t sure what to expect. They chose to err on the side of caution.
Seth still remembers when his care team told his family that he couldn’t play church league basketball. “My dad pushed back,” he recalled. “He didn’t want me to be a boy in a bubble.”
Then it was karate. Then weightlifting. Then rec-league basketball. “It was hard to keep me down as a kid,” Seth said. “But I tried to be careful. My mom would sit on the sidelines praying.”
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